Small Win – Medicare Rebates for ICSI

When I started working on this campaign I did quite a lot of research on the Medicare Rebates relating to IVF and surrogacy. During my research I noted that the Health Insurance (General Medical Services Table) Regulations 2011 excluded Medicare rebates for item numbers 13200-13221. In the Medicare Benefits Schedule these item numbers related to various IVF procedures.

What I also noticed that ICSI (the process of inserting the sperm directly into the egg) was item number 13251. As you can see not one of the item numbers excluded from the Medicare rebates. So I asked my fertility clinic if I could receive a receipt so I could claim my rebate. They denied me.

So I rang and wrote to Medicare asking for assistance. They initially advised that all IVF treatments used for surrogacy were excluded from the rebate. I pointed out to them that this is not what the law says. So they referred my concerns to the Department of Health and Aging.

I am pleased to say, that today I have received written advice from the Department saying that my understanding of the law is correct and that I am entitled to a rebate for ICSI.

If anyone else used ICSI for their embryo creation, I’d encourage you to ask your clinic to bill you separately for this treatment so you can claim your rebate from Medicare. If you have any issues I’d encourage you to print out this letter and show your clinic, or when you ring Medicare.

This is a great small win for us!

It also poses more questions. Why are all other IVF treatments excluded for Medicare rebates but this one is not? I think this just adds to our argument that we should be receiving the full rebates.

Don’t give up everyone, I feel a change just around the corner. 🙂

Letter from Dept Health & Aging

Response from Department of Health & Ageing

Today we received a promising response from the Department of Health and Ageing.

Firstly they “commended” us for the work we are doing to create awareness about the Medicare laws as they relate to surrogacy.

Secondly they reiterated that they are committed to medically necessary services to the public and are therefore actively considering the issues raised in the surrogacy paper. They have advised that I am welcome to contact them to see how this work is progressing and provided the contact Ms Mary Warner, Director of Medical Services.

I am so proud of this response and hope that they are sincere in their response.

Please continue the great work you are all doing in creating awareness about this issue, great joint effort.

Letter from Dept Health & Aging

Tracy’s Story

Let me just start this by saying that in no way does my story compare to the heartache that others in this blog have been through. My husband and I have been blessed with a gorgeous little boy. However, the current Medicare legislations are certainly putting an extra hurdle in the way of completing our family.

Tracy with her husband John and precious son Oliver

Tracy with her husband John and precious son Oliver

John and I met and married within a year and a half. We were in our early thirties and just knew it was right. We both had stable jobs, I was a primary school teacher and John was an engineer. We had the car, the house, the Labrador. The next thing to conquer was the kids! We were so excited to start a family together and hoped to have three children. I come from a small family and John’s family are all in Ireland so it was our plan to bring back the noisy house and big Christmases that I’d dreamed of. We fell pregnant very quickly. At our 10 week scan, we found that the heartbeat had stopped. We were devastated. But four months later, we found that we were pregnant again. I was anxious, but as the weeks rolled on I got more and more confident that this pregnancy was going to work. I was healthy throughout and we got busy preparing for our new addition. Oliver was born after a drug free natural labour on the 5th of November 2012. As the doctor placed him on my chest, I began to feel strange. I don’t remember much after that… Apparently, my uterus inverted causing a severe post partum haemorrhage. I required 13 units of blood in a transfusion and my blood pressure was so low that they were expecting brain damage or cardiac arrest! The only way to save my life was an emergency hysterectomy. My poor husband saw all this unfold and had to give the consent to perform the operation, something he’ll never come to terms with.

I remember waking up in the ICU after being on life support for a couple of days. I was so relieved to hear that my son was fine but was absolutely heartbroken to hear that I would not be able to carry any more children. I just sobbed and sobbed and sobbed. I had never felt emotional pain like that before.

Tracy's wishes she could give her son Oliver a sibling

Tracy’s wishes she could give her son Oliver a sibling

Anyway, fast forward almost 4 months and I love being a mummy. I’m on maternity leave and enjoying every minute of it. Physically I have healed, however, I’m not ready to give up the dream of more children. I’ve looked into adoption and permanent care, however, there are so few children to be placed that our chances aren’t high. During my research I have found that finding a gestational carrier can happen to everyday families like us! At this stage, I’m unsure if this will occur in Australia or overseas. This is completely dependent on whether I can find a carrier here or not, but either way, I will be doing my IVF cycle on home soil. We have discussed the priorities for our family and have decided that another child is more important to us than a new car or material possessions. We will be using all of our savings to fund this and we are just hoping that the bank will allow us to take out another loan to cover the rest. If it doesn’t work the first time, I don’t think a second time will be an option. A child is our priority but if we can’t get more money, there is nothing we can do. I already feel ‘ripped off’ that I had to have a hysterectomy, but being charged extra for IVF services is like kicking us when we are down. All I can do is to hope that our actions here will persuade the powers that be to change the Medicare ruling and give us the chance to complete our family.

Jillian’s long two weeks ahead

Wow it’s here already. Today I start my injections for my first IVF cycle.

I’m not really sure how I am feeling – maybe anxious, nervous and even a bit pressured. Not pressured to go through with the cycle –  I would do it ten times if I could!  Pressured because I know I must succeed with this precious cycle. Without Medicare benefits this may well be my only chance.
Many women going through their first cycle are aware of the slim success rate and already start planning a second attempt. For me (and many of you following our blog) a second cycle would be what dreams are made of! Its like winning the lottery!

Unfortunately, we just can’t afford it as is.
In fact, when looking at the statistics, and my chance for success, I almost went straight from thinking about doing my own IVF cycle with my own genetic (but potentially not young enough) eggs, to the “safer financial idea” of a donor IVF cycle, where a younger woman would donate her eggs so we could have a family. I was justifying this idea in my head as “better value for money”.

What was I thinking?

How could I even start thinking that way? My desperation for a child was turning into a financial decision!!! It was only when my mother in law said to me “you don’t want to be left wondering ‘what if…’ ” and she is right. What if? What if my eggs work? I have to find out.
This should be the most exciting two weeks of my life. Many babies are created in a night a passion with those we love the most. But for us the process is far more complicated. For some of us the medication tends to make us somewhat “moody” and for others it’s a breeze. The stress causes arguments in our lives often with our partners who tread on egg shells (pun intended) as they support us over the two weeks it takes to do the stimulation to collect the eggs. Never-the-less, I know our love will withstand these pressures. We made it this far –  there’s no turning back!!!
I have my fingers crossed! Two weeks seems forever, but its going to be positive thinking all the way!!!
To all the amazing people following our blog and supporting our fight –  I thank you. Your support is wonderful.

Tiffany’s Story

Well low and behold I got pregnant the very first month I tried. I remember being totally shocked. All was going well until I reached 7 weeks and started to bleed. I remember going to the hospital, laying in the ultrasound clinic and hearing the words that would haunt me forever “There is no heartbeat.” I can still fell the emotional pain that I felt being wheeled to a ward past the maternity unit and seeing all the mothers with their newborns.

We were told to go home, wait a couple of months and try again. Well we tried and tried for 2 years and nothing happened. Eventually after clomid, injectables and iui we jumped on the IVF roundabout. Again I was shocked when I got pregnant the first time. On my birthday I found out that I was having twins. I thought that God was giving me back the baby I lost plus one.

When I was 21 weeks pregnant I went into spontaneous labour and my precious twins Jacob and David were stillborn. My heart was broken but I was even more determined to try again. After 3 more IVF cycles we got pregnant again. This time we made it to 23weeks and our daughter Aimee was born and lived for 2 hours. After Aimees birth I the doctors could not control the bleeding. I haemorrhaged and needed most of the blood in my body replaced. I ended up having to have an emergency hysterectomy.

I thought that my dreams of being a mum were over. I went home from the hospital with empty arms and an even emptier heart. I struggled for 3 year. Seeing counsellors and taking anti-depressants. I could not let go of the idea of being a mum. It almost cost me my marriage. My husband was devastated by the deaths of our children and could not stand the thought of being hurt again, whereas with me it was all I could think about. I spent day and night scanning the internet trying to find an answer to our heartbreak.

I found a website that hooked potential surrogates up with perspective parents. I started talking to a woman named Janice. She agreed to help us. We flew to the other side of the country to meet with her. When we got there she told us that she wanted $10, 000 to be a surrogate for us. Besides the fact that it is illegal we also felt that it was immoral. We worried that if we payed her now she would come back later asking for more money. We flew home even more deflated than before.

We went into counselling and tried to resign ourselves to being childless. I decided to go back to university and get a teaching degree. Life plodded along, our dogs were our kids and we travelled overseas and did all the things that people say you can’t enjoy when you have kids. The problem was we didn’t really enjoy them; there was still a hole in our hearts.

In 2011 two of my cousins approached me. One wanted to donate eggs and one wanted to carry a baby for us. I was so scared, too scared to get excited. Even when my cousin Yvette called me and said she was pregnant I did not cry or show much emotion. All I could think is she will decide to keep the baby; I’m going to get hurt again.

Since Yvette lived interstate we did not get to go to all the appointments. She sent us lots of pic and again it felt like we were looking at someone else’s child. During all this time our biggest worry sadly was money. It cost us every bit of our savings to have this child and we were wondering if we would be able to provide her with the life that she deserved.

Finally the day came Yvette was scheduled for a c section as our daughter was breech. I went into the theatre with her. My husband waited outside. They pulled this screaming pink little thing out of her and my heart melted, but still I did not feel like she was mine. All I could think was please God don’t let her change her mind, I can’t live through any more grief.” They cleaned our daughter up and handed her to me. It was like an out of body experience. I felt like I was going to faint.

When my husband held our daughter who we named Jasmine Grace for the first time he broke down. He tells me now that he knew from the second that she was put in his arms that she was ours. The fact that she looks just like him helps too.

The day that we left hospital was a day of mixed emotions. I was so happy yet I knew that my cousin was hurting so badly and there was nothing I could do to take her pain away.

The first few weeks at home are a blur now. I sort of felt like I was babysitting. I took about a month to really bond with Jasmine. It wasn’t until the legals were underway that I totally felt like her mum.

Jasmine is now a year old and she is my whole world. I would go through the last 15 years again in a heartbeat to get her. Thanks to Facebook my cousins can see her whenever they want and we have been to Adelaide to see them twice in the last year.
I’m not going to lie and say that our surrogacy journey has been easy. For one thing it looks like we will probably have to sell our house to pay off the debts we incurred during this process and the actual pregnancy was a rollercoaster of emotions, but if people ask me if I would do it again my answer is always the same “Hell yes “.

Holly’s Story

Holly & Ash

Holly & Ash

At age 14 i was diagnosed with a severe mullerian anomaly with a unicornuate uterus and severe endometriosis. The endometriosis drowned my fallopian tubes and one ovary. What i was left with was half a uterus, one ovary that was not connected, one kidney and no cervix. At 14 years old this was devastating. At 18 I met Ash (23), he was beautifiul, kind and supportive. Like any normal couple our age we had a normal lifestyle, normal paying jobs and a house loan but there was just one thing missing, a child. 6 operations later the news I received was heart breaking ” I’m so sorry Holly, there is nothing more we can do” Surrogacy was our only option. I spent months resaeaching how to go about it and what to do. My gorgeous mum was the first person to offer, it was like a dream come true. Sadly Mum was diagnosed with hormone related cancer and was no longer able to carry our baby. Six months later a wonderful woman offered to carry my baby. The words estatic and overjoyed don’t even come close to what we were feeling! However those feeling didn’t last long when we were told that medicare wouldn’t cover us for IVF. We are looking at around $15,000 – $20,000. As a normal young couple this just seemed out of reach. Medicare cover everyone else for IVF but will not cover us. Not only do we have $15-20,000 for IVF but we also have another $20,000 + for other surrogacy involved costs. It is my understanding that when Medicare made this decision surrogacy was illegal, now that surrogace IS legal here in Australia the outdated laws need to change. So over all i feel discriminated against and think this is greatly unfair. Please change the law so that us and couples like us can be blessed with a family

Negative

For those not familiar with the pain of a negative result after an embryo transfer to a surrogate – you may wish to read this.

Our Surrogacy Story

So today we got the news that our first little embryo did not make it. Chloe is not pregnant; there will be no baby in 9 months.

This is going to be a self-pity post, so if you don’t want to hear it, close the post now. I make no apologies for this post. I said from the outset of my blog that this would be an honest diary of the process and my feelings. I don’t expect anyone’s sympathy from this post. I just want to record my feelings of right now and also make others aware of the shit we go through in this process.

I will also say up front, that it goes without saying, yes it’s not the end of the world, I’m not dying and I already have one beautiful girl. Yes I am blessed and I know it. Yes I am better off than…

View original post 979 more words